Privacy Policy (4-12)

4. We Do Not Disclose Information to Unaffiliated Third Parties; Limited Exceptions

We will not disclose your personally identifiable information to unaffiliated third parties without your express consent, except in the following limited circumstances:

4.1  Gift of Life Site Vendors. We may employ other companies to perform functions on our behalf, such as maintaining the Website, providing services related to the Site, collecting information, responding to and sending electronic mail, or other functions necessary to our business. We may need to share your personally identifiable information with these companies (collectively, "Site Vendors"). We will provide Site Vendors with only that information necessary to perform their functions, and we will not allow them to use your personally identifiable information for any other purpose.

4.2  Imminent Harm. We may reveal your personally identifiable information to attorneys, private investigator organizations or law enforcement agencies if we believe (a) that you are in risk of harm from another, or (b) that you are harming or interfering (or will imminently harm or interfere) with others or violating (either intentionally or unintentionally) our Terms and Conditions of Use or otherwise violating legal rights.

4.3  Legal. Gift of Life will reveal your personally identifiable information, to the extent we reasonably believe we are required to do so by law. If we receive legal process calling for the disclosure of your personally identifiable information we will attempt to notify you via the email address you supplied during registration within a reasonable amount of time before we respond to the request, unless such notification is not permitted.

4.4  Transfer of Site. Gift of Life shall be entitled to transfer to a third party information it collects, including any personally identifiable information, in connection with a sale or transfer of all or substantially all of the assets of the business entity responsible for the information under this Policy, provided the acquiring third party has agreed to safeguard your personally identifiable information with protections that in all material respects are the same as or more protective than those set out in this Privacy Policy.

5. Changing or Removing Information; Opting Out

5.1  Discretionary Account Information.  To allow appropriate control over personally identifiable information, you can contact us at the address provided in Section 11 to access the personally identifiable information you have provided to us via the Website or to change or update discretionary information that you have previously submitted.

5.2  Opt-Out.  If we choose to send to you bulletins, updates, or other unsolicited communications that are marketing-related materials, we will provide you with the ability to decline -- or “opt-out of” – receiving such communications.  Instructions for opting-out will be provided if and when we determine to send you such a communication.  Please understand that you will not be allowed to "opt–out" of formal notices concerning operation of this Website, and legal and other related notices concerning your relationship to the Site.

5.3  Deleting Information. Finally, if you request, unless you have registered as a Donor, we will remove your name and all other personally identifiable information from our databases.  Please understand, however, that it may be impossible to remove this information completely, due to backups and records of deletions. In addition, please understand that, if you request deletion of your information, you will be unable to utilize associated features of the Website and any associated services or information.  You may not remove de-identified or Aggregate Information from our databases.  Donor information is governed by the Registry Consent and may not be deleted, but may, at the Donor's request, be removed from the active registry list.

6. Security

We have put in place security systems designed to prevent unauthorized access to or disclosure of information you provide to us, and we take all reasonable steps to secure and safeguard this information. We store all personally identifiable information we receive on a separate system, designed to be secure and isolated from direct connection to the Internet.  Gift of Life employees (and employees of our Site Vendors) are required to acknowledge that they understand and will abide by our policies with respect to the confidentiality of personally identifiable information. Moreover, we provide access to our databases containing personally identifiable information on a need-to-know basis only.

Our security systems are therefore structured to deter and prevent hackers and others from accessing information you provide to us. We also use software programs to monitor network traffic to identify unauthorized attempts to upload or change information, or otherwise cause damage.  Please understand, though, that we do not warrant as fail-proof the security of information provided by or submitted to Gift of Life.  Due to the nature of Internet communications and evolving technologies, we cannot provide, and disclaim, assurance that the information you provide us will remain free from loss, misuse, or alteration by third parties who, despite our efforts, obtain unauthorized access.

7. Notice of Security Incident

If we detect, despite the safeguards set out above, an intrusion or other unauthorized access to or use of personally identifiable information (an "Intrusion"), we will (i) notify effected users of the Intrusion if the information at issue is sensitive, in our discretion, (ii) deliver this notice by the means we deem most efficient under the circumstances (such as, for example, first class mail or email); (iii) use contact information for each affected user that is current in our files; and (iv) use commercially reasonable efforts to accomplish these steps and effect this notice in a timely manner. To the extent applicable law requires steps in addition to those specified above, we will under all circumstances comply with applicable law.

8. Privacy Protection For Children

Our Website is not directed at children, and we will not accept or request personally identifiable information from individuals we know to be under 13.  In accordance with the Children’s Online Privacy Protection Act ("COPPA"), if we learn that a child under 13 has provided personally identifiable information, we will either (i) delete this information from our databases, in accordance with our deletion policy, set out in Section 5.3, or (ii) obtain verifiable parental consent, in accordance with COPPA.

9. Notification of Changes

From time to time, Gift of Life may change its Privacy Policy. If we make any changes regarding disclosure of personally identifiable information to third parties, we will attempt to contact you prior to the date the modified policy is scheduled to take effect. We will post notice of the new Policy from the privacy link on our Website. With respect to Site Visitors and Patients, your use of our Site following any such change constitutes your agreement to follow and be bound by the Privacy Policy, as changed. With respect to Financial Supporters, Donors, and Medical Professionals, no such changes will take effect unless and until you have provided us with your consent to such changes, in accordance with Sections 1.2 or Section 1.3, above.

10. Relationship to Terms of Use and Other Contracts

This Privacy Policy must be read in conjunction with our Terms and Conditions of Use, and the provisions of our Terms and Conditions of Use are incorporated herein.  To the extent the Terms and Conditions of Use conflict with the terms of this Privacy Policy, the terms of this Privacy Policy will control.  This Privacy Policy should also be read in connection with the Registry Consent (for Donors), and the MatchQuestTM License (for Medical Professionals). 

11. Contact Us

If you have any questions about this Privacy Policy, the practices of this Site, or your dealings with this Website, please contact us at: 

Attention: Operations Manager
Phone: 1-800-962-7769

12.  Effective Date

The effective date of this Privacy Policy is March 7, 2006.

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