Elan's Donor Circle
Elan, 10, is battling a severe, rare blood disorder that threatens his life. We urgently need your help to find his lifesaving marrow or stem cell donor. His family is Iranian Jewish and Elan is half Ashkenazi and half Sephardic. His best chance of a match is with someone of similar ancestry.
Ten year old Elan Shademan and his family received devastating news five months ago.
Elan was diagnosed with MDS, a rare, severe blood disorder. His only chance for survival is a bone marrow/stem cell transplant.
We are in a desperate search for a bone marrow match for Elan. We have been searching for a match for four months with no luck and are running out of time. Elan has had to start chemotherapy to keep his disease under control and prevent it from progressing towards leukemia, specifically AML. Elan's is a complicated case as he has other genetic abnormalities including GATA 2, monosomy 7, and MSH6 deficiency further enhancing the dire need for stem cells.
His family has European and Iranian Ancestry and his best chance of finding a match is with someone who shares a similar ancestry.
Although ethnic background and ancestry play a role in finding a matching donor, anyone who is 18 to 35 years old can help, particularly those with Elan's background.
Testing is so easy, it just takes a cheek swab and you could save his life or the life of another child in need. Please also consider the $60 cost associated with testing each kit. If you are not able to join the registry, please consider sponsoring the cost of a swab kit so we can test as many people as possible and find Elan's donor.